Luke ran a sensational forum on patient recovery for staff from our Service at RNS Hospital. Staff absolutely LOVED it and feedback included, “Awesome”, “Left beaming”, “Learned a lot about recovery”, “Inspirational and relevant,” “Best presentation ever”. Luke has an amazing ability to change the perceptions of living with a chronic illness as well as inspiring and motivating through music and humour”

— Dr Glenys Dore, Psychiatrist, Clinical Director Northern Sydney Drug & Alcohol Service.

Never give up quote 1

Why I'm sick of hearing "never give up"

Some people say giving up is not an option. They don’t just say it, they shout it at themselves through clenched teeth while lifting something heavy over their heads for no particular reason. 

Then they write an ebook about it, and before you know it there’s a whole bunch of freshly motivated individuals out there shouting slogans and lifting heavy things over their heads for no reason. 

Never give up. Ever. No matter how bad things get. No matter what the pain.  Hang in there and fight. On your feet…

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Why don't men talk about IBD?

Look, I don’t want to sound like a man-hating feminist. 

A lot of my best friends are men. A lot of my heroes too. In fact, I’m a man. 

But when it comes to talking honestly and openly about IBD, men, as a group, just aren’t cutting it. 

Take it from me, I know. I’ve been an advocate for people living with IBD for the last six years. Almost every single person I encounter in my advocacy work is female.

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https://crohnsdisease.com/living/dont-men-talk-ibd/

Lobotomy

Wait, have I had an ostomy or a lobotomy

There was a time when nobody went on TV and talked about what was happening deep inside our colons. Do you remember that time? It was called the 90s. 

It was also called the 80s, 70s, 60s, 50s, 40s….well, you name it. 

I’m not saying it was a better time. In fact, I think it’s pretty cool that we talk about our bowels on TV now. It makes diseases of the bowel feel less strange and embarrassing. It raises awareness and educates people. It promotes energetic conversation rather than awkward silence.

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No-one wants to hear you talk about your chronic illness

No-one wants to hear you talk about your chronic illness. 

This is what I learned while attending HealthEvoices17, a gathering of patient advocates from all over America, in Chicago last weekend. 

No-one wants to hear you talk about your IBD. IBD is a gross and shameful and depressing thing to hear about. It involves poo and bowels and things going up your asshole with cameras on the end of them. No-one wants to hear that shit. 

No-one wants to hear you talk about your diabetes, Type 1 or Type 2. No-one…

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Cca teen camp

How I feel on World IBD Day

Today is World IBD Day, a day to put a microphone in front of people living with Crohn's disease and Ulcerative Colitis. 

This year marks the 25th anniversary of my diagnosis with Crohn's at the age of 14. 

It's not a time in my life I look back on with any great fondness. What hurt me even more than the physical pain was what IBD did to my self-confidence. It changed me as a person. Between the ages of 15 and 18 I had no friends at high school and no social life to speak of. The loneliness was…

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On the Burden of Being Inspiring - Part One

Published March 10th, 2017

It’s been a long time since I wrote anything new about my condition. 

The reason is not because nothing new has happened. It’s because the new events don’t sit well with the happy ending of my old story.  That old story was just about perfect. It was complete.  It was inspiring

This new chapter of my life, well, I just don’t know what it is yet. I’m not sure how it fits. I’m not sure I like it. I’m not sure you’ll like it. It’s confusing. 

Back in 2013 I spoke at events all…

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